Friday, February 18, 2011
Thursday, February 17, 2011
Wednesday, February 16, 2011
Monday, February 14, 2011
Sunday, February 13, 2011
Saturday, February 12, 2011
According to an article in today's copy of the Salt Lake Tribune:
Friday, February 11, 2011
RECAP OF YESTERDAY:
According to the doctors, Trevor's brain is not regulating his body temperature, which has been at about 102. This is common with traumatic brain injuries, but is scary nonetheless.
The physical therapists came in and tried to sit him up again. He still couldn't support his head or body. I hate watching it. During the last rodeo, he never really struggled holding himself up but that is not the case this time around. To me, that is terrifying. It exhausts him, it exhausts me, it exhausts everyone. I noticed my first grey hair today. I blame Trevor 100%.
The doctors' goal is to prevent Trevor from needing a shunt, which is a CSF (cerebral spinal fluid) drain that would be put in the ventricles of his brain in order to funnel fluid into his abdomen to be reabsorbed. His brain currently is not draining the CSF on its own. However, they want to wait until last minute to resort to the shunt because it is a life long thing and is not recommended for people at such a young age. Let's hope that his brain starts regulating the spinal fluid on its own STAT. Say your prayers, amigos.
Trevor waved yesterday. MILESTONES!
My dad had Kevin sign Trevor's hat and then Trevor took the marker and tried to sign Kevin. Literally, he tried to sign him.
We are debating on whether to send Trevor to rehab here in Salt Lake City or to Craig in Denver. His doctor (who was also Kevin's doctor) recommends Craig (where Kevin also went). On the other hand, all of Trevor's friends are here in Salt Lake, which I think would be really beneficial for him to have supporting him and helping him get through. What do you guys think?
TODAY:
There's good news and there's bad news. I'll start with the bad news.
Trevor's physical therapists came and tried to stand him up today. It went about the same as trying to sit him up the previous two days...
The nurse informed us that there's a good chance Trevor is suffering from right sided neglect. According to Wikipedia, (do NOT tell my professors I'm using Wikipedia as a resource) right sided neglect, also known as hemispatial neglect, is a condition in which, after damage to one hemisphere of the brain, a deficit in attention to and awareness of one side of space is observed. In other words, Trevor's brain is telling him not to pay attention to the right side of his body. This causes him to always resort to his left arms and legs first. If he wants to use his right side, he will often use his left side to do so. For example, he will try to lift his right arm up with his left one. Hopefully the nurse is wrong!
Now onto the good news...
As you can see, Trevor wrote his name for the first time. Kind of.This morning, Trevor casually grabbed the remote and turned on the TV. Later, he changed the channel.
He is not yet talking, but grunts all the time. This is a good sign because his vocal chords are obviously working. Now if he would just talk!!
Trevor had a bunch of gunk in his mouth, so my mom tried getting it out with the medical equivalent of a toothbrush. He then grabbed the toothbrush and scraped it out himself. It was like a toddler saying "I can do it myself!"
Yup, he's gonna be JUST FINE...
Wednesday, February 9, 2011
Today in a nutshell
Tuesday, February 8, 2011
Monday, February 7, 2011
WOO HAIKUS FOR YOU [to sum up the evening]

Blue Cross Blue Shield Calls
Asks to speak to Trevor Jay
No, he's comatose
WOO WOKE UP
He's super restless
Everything drives him insane
Wiggle wiggle Woo
MATUSHKA <3
Sweet baby man child
Takes his mother by the neck
And kerplop, a hug
TRICKS & TREVOR
We taught him some tricks
High five, thumbs up, wink and kick
How he's progressing
MEGAN & TREVOR: SWEET INSATIABLE LOVE
A maiden of beaut
A lad takes her by the hand
And lays it a smooch
Alright, so I feel like a pessimistic jerk for ever thinking that Trevor was paralyzed on that right side. He was just trying to scare us a little, keep us on the edge of our seats. Today he has been extremely alert. The doctors came in and squeezed Trevor's arm. He moved his right arm towards the pain. Then they squeezed his right leg. He moved his right leg away from the pain. He is doing all sorts of crazy tricks on command, like opening up his eyes, squeezing his left hand and lifting his legs and arms. He can't do thumbs-up or hold up two fingers yet, but last time he couldn't do that until he was talking so I think we're okay...

Sunday, February 6, 2011
Saturday, February 5, 2011

If the expression "no news is good news" applies to brain injuries then so far, so good. Knowing Trevor, I think he's just waiting for the perfect time, when nobody is expecting it (most likely at 5:00 AM, when we're all trying to finally get some sleep for the night) to wake up in full-blown toddler mode, fighting to pull out his catheter and do 360's in bed.
The one thing I've found with Trevor is that he's not a big fan of regressing, conforming or doing what he's expected to do. He will stay stable and consistent for a while and then BLAOW!, progress like crazy and blow everyone's minds. Hopefully that's the case again this time. On the other hand, "slow and steady to win the race" is also fine by me!
RECAP FROM LAST NIGHT:
My friend Brad, the nurse who traveled on the medical plane from Lander to Salt Lake City with Trevor, came in to talk to us today. He said that the flight to Lander took an hour and a half because of winds but that the flight back to SLC took only 45 minutes. The one thing that was incredibly reassuring to hear was that for a small hospital, Lander did everything surprisingly right. They administered Trevor the three correct doses of the three correct medications to keep him stable and moving forward. I'm sure a lot of that had to do with the fact that they were in constant communication with the University hospital, but still great news!
Paraphrasing my sweet sweet mother, Trevor's nurse gave him some pretty potent medicine last night to make him you-know-what. Can you imagine being a grown-ass man in a room with your mother, wearing a dress, paralyzed on one side, strapped down on the other, and having to do your business? How demeaning. Well, we were both in Trevor's room when his blood pressure sky-rocketed and he got the poopy face. That's when I dipped out. Trevor started doing the squirm that all moms recognize. She said to him, “Trev, I'm going to leave the room so you can do it right in your bed and then I'll have a nurse clean you up.” The minute Woo thought she was gone, he struggled really hard but managed to open both eyes. It was like he was checking to see if the coast was clear, then immediately was bound and determined to get his hand out of the strap. The rest of the story is none of your business.
Also this morning, Man-nurse McGee let my mom untie Trev's wrists from the bed. The first thing he did was reach over with his left arm to feel his right arm. There's no way of knowing if that actually means anything or not, but the fact that he took the initiative to feel his right arm, the one that might be paralyzed, is heart-wrenching to me. It's almost like he's starting to realize what's up...
